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SuperSurvivor: Beating the Odds with Judy Cage
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After a massive stroke left her fighting to walk, talk, and think clearly, Judy Cage refused to accept the limits placed on her recovery. In this inspiring episode, she shares how determination, resilience, and a little “stubbornness” helped her defy the odds—returning to work, writing her book Super Survivor, and mentoring others along the way.
From invisible challenges to powerful breakthroughs, Judy reminds us that recovery doesn’t stop at six months—it’s just the beginning.
Guest Social Media info - @judykimcagetheauthorpage
You can find this episode’s transcript here.
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that all stroke survivors? you know, You know, I mean, generally they're told that you have you have six months after, after the stroke,
bindwaves-hoststroke, um, that you can.
judy-cageyou know,
bindwaves-hostknow, recovered, or that you have the most neuroplasticity,
judy-cageafter 6 months. Um,
bindwaves-hostum, that may be the case, although,
judy-cagethat
bindwaves-hostum, that doesn't mean that healing or recovery stops.
judy-cageUm, I, Things
bindwaves-hostthings have come back Hi, I'm Brittany and a member of BIND and Brain Injury Survivor. And hi, I'm Carrie, a stroke survivor, and a member of BIND as well, and today we are excited to welcome Judy Cage. Judy is also a stroke survivor and an author and an advocate who has defied staggering medical odds and now helps others after navigate life after trauma. So welcome, Judy.
BernardOpinions shared by the guests of the show are their own and do not necessarily represent the views of the hosts bindwaves or the Brain Injury Network. This podcast is for informational purposes only, and it's not a substitute for professional medical advice, the diagnosis or treatment. Always seek the advice of a healthcare provider with any questions you may have regarding a medical condition. Thank you.
judy-cageThank you thank you so much.
bindwaves-hostOkay. And, um, if you would just kind of provide a brief overview of your stroke and your recovery journey so far.
judy-cageAbsolutely. Uh, well in, January of of 2019, I
bindwaves-hostI had a
judy-cagea massive hemorrhagic stroke.
bindwaves-hostUm,
judy-cageblood flooded my, the right side of my brain and so it took out the left the left side of my body. Um, I I had, uh, and I'll just go head to toe basically. Um, I I had, uh, double vision. Uh, my left arm fell out of my shoulder socket. Um, I had dropped foot and, uh, left side, entirely. Um, so, and then I and then I had, you know, cognitive issues, speech issues, um, you know, you know, I've lost some. Um, bodily functions, but, but um, I actually, a with the combination of. um, uh, you know, um, um, working massively at the therapy and, um, spontaneous recovery. was I was able to get most of it. Um, great. yeah. Yeah. Um, and, and a pretty, uh, Quick quick amount of time. Um, I was actually to to walk out of. acute rehab, um, and, uh, I, I basically had spent eight weeks total in the hospital. Um, but able I was able to walk out and then, um, after one one round of occupational therapy, actually actually returned to work. So I, I, um, uh, uh, some people might call it crazy. Um, I was just stubborn. That, stubborn. you know, after a stroke or brain injury, I think stubborn is a good quality to have. Mm-hmm. Yes. am I have valued it a lot now. Yeah. Yeah. So what do you think was your biggest improvement, um, since your stroke? Um, Um, you know, I'd say that it, it, um, It was probably the, that that recovery, the gaining that fallback, but then. um, uh, also I think the things that I've regained that I that I never thought I would like, um, my, um, uh, Reactions and my and my instincts and like my reflexes, have those have actually come back better than they were before. not I'm not entirely sure why, I'm not going to but I'm not gonna question it. Um, you Um, you know, now I. catch catch things, but as I drop 'em, instead of, you know, letting something fall and crash. Um, that, I mean, I mean, I was clumsy before, so I never expected that sort of back. back. Um. But but yeah, it, it's really just, oh oh gosh, the, yeah, the walking, um was, probably the best best I had felt. in a while, That's good. Yeah, I know. I tell everyone, I think for me, 'cause my stroke, I had a hemorrhagic as well. It was very similar. Mine was on the right side, affected the left side. I tell everyone, I think for me, my real independence was when I got rid of the cane because then I could carry my own coffee. I could actually open the bathroom door on my own. I didn't have to have someone go with me, you know, everywhere I went to open the door for me. So to me I was like, yeah, independence. Finally I'm there. Um, Um, I mean on a, on a more, know, know, it, um.
bindwaves-hostum,
judy-cageOn a on a higher level where you're impacting more people, um, I would say driving and getting that back was also pretty key. Yeah, that's, yeah. That was mine. And they're putting others on the road at risks. Yeah. Right. So, um. What was your career before your injury? um, Um, before my my injury I was a, um, A compliance
bindwaves-hostofficer for
judy-cagecommercial commercial warranty. Um,
bindwaves-hostI had started
judy-cageof in the and it's kind of in the field of accounting, audit, then then risk and controls. Okay. And, um. No, go ahead.
bindwaves-hostI'm sorry. I was just gonna say, and were you able to go back? You were able, I mean, I, from, we talked, I think you were able to go back into that and, um, I was, you were, they were very accommodating, if I remember correctly. So, Very much so, um, I, they, the company is great in terms of,
judy-cageyou know,
bindwaves-hostyou know, they had, um,
judy-cageuh, you know,
bindwaves-hostyou know, they followed the rules of long term disability. Um,
judy-cageof of that company and, um, the company itself, um, was a
bindwaves-hostwas a bit more stringent and unpleasant, but the, um,
judy-cageBut
bindwaves-hostbut my company itself, um, were super supportive. They,
judy-cagegave me as much time as I as I needed to go through through the therapy and then go through the outpatient therapy. Um, and then they always wanted to listen to my doctor and, you you know, we as we move forward, so. um, my, my stroke doctor said after the outpatient I was permitted to work four hours a week. Um, Um, which I thought that was crazy until I started and understood that, wow, four hours is actually pretty hard. Um, and and then I just built my way back up. Um, I and I was working, um, I was I was working, um. I'm sorry, on, On, um, on long term until like, like, I built it back up until November of that, of, um, five years. And then, um, they kicked me off for where they take me hours and then shortly after that I was actually promoted. So.
bindwaves-hostThat's awesome. And were, did you find that you needed any additional like or new accommodations to help you do your job that you didn't need before the stroke?
judy-cageI I did, um, before the stroke, I would always push I and I think, you know, I mean, I guess that's how, but, um, uh, they allowed me to work, um, you know, you know, kind of closer to, you know, up later. where If I if I was, I started, I would start at like 10 instead set of, you know, 8:30 or or nine. Um, and and then if I. needed, if I If I was failing cognitively, uh, my boss would tell me to He would see see it on my face on video calls, or hear it in my voice, and would he would just say, Judy Uhuh, like, Uhuh, like, shut down. And, um, was was incredibly helpful. I mean, sometimes I would be stubborn and say, boss, boss, I can, I can get through this. It's not a problem. But they, absolutely was great. Supportive feeling to know he was looking up.
bindwaves-hostThat's great. That's good. Um, so part of your journey, like did, are you part of any organizations or support groups? I am, i'm, I'm
judy-cageam a a peer mentor at the hospital. Um, and and also I, I also talk to numerous stroke survivors. I tell everyone to pass them my way so I can. help them out. Um, I am part I'm part of the, uh, stroke support group group at the hospital. Um, and when, when, uh, pre COVID, um, the, hospital also also had a patient advocacy group, and I was a and I was part of that as well.
bindwaves-hostThat's great. And I know that through all this, after your stroke, you went out and wrote a book. Called Super Survivor. So how, how did you decide to write a book in the midst of your recovery and trying to go back to work and do all of that? That's pretty amazing. Thank yeah.
judy-cageUm,
bindwaves-hostwell, when I, a few months out of the stroke, I, um,
judy-cagea.
bindwaves-hostHad
judy-cageSet
bindwaves-hostset my mind on a goal and I said, let me run the Broad Street run in Philadelphia.
judy-cagewhich is a 10 mile run. I'd
bindwaves-hostI had never run long distances before. I, you know, kind of detested it. Even in my track career, I had a career, I had
judy-cagedid short
bindwaves-hostshort distances.
judy-cageum, and,
bindwaves-hostum,
judy-cageI had,
bindwaves-hosti, so I started a blog to document that journey saying, um, yeah, I look at this, I wasn't rocking a few months ago and now I'm gonna run 10 miles through the city of Philadelphia.
judy-cageAnd
bindwaves-hostum.
judy-cagebut
bindwaves-hostbut then that was stopped short. My doctor said, do you think you should ask your doctor
judy-cagewhether
bindwaves-hostwhether you can run 10 miles? You know? And
judy-cageI said,
bindwaves-hostI said, oh, doc, do you think you can run 10 miles?
judy-cageAnd he
bindwaves-hostand he says, um,
judy-cagesays,
bindwaves-hosthe said,
judy-cagelike I
bindwaves-hostlike, I could run the 10 miles, but at the training you would, would be bad for blood pressure going up and down. Oh.
judy-cageUm,
bindwaves-hostso I had to switch goals or switch gears. I,
judy-cagea
bindwaves-hostthere was a whole number of.
judy-cageother
bindwaves-hostgoals like going to, um, get a professional certificate at the Berkeley School of Music.
judy-cageUm,
bindwaves-hosti,
judy-cagejust
bindwaves-hostjust wanted to kind of
judy-cagedabble and live
bindwaves-hostand live in life.
judy-cageAnd,
bindwaves-hostand, um,
judy-cageand once
bindwaves-hostonce the five year mark, um,
judy-cageum, I
bindwaves-hostI had turned
judy-cagethat
bindwaves-hostthat blood into,
judy-cageum,
bindwaves-hostbecause
judy-cagethe
bindwaves-hostthe five year survival rate forrr stroke.
judy-cagewas in the,
bindwaves-hostin the study that, like one of the very few studies you find out there, um, was 26.7%.
judy-cageSo when
bindwaves-hostwhen I,
judy-cageUm, past
bindwaves-hostpassed that, mark and I, I had kept,
judy-cageI had
bindwaves-hostI had kept
judy-cagemy
bindwaves-hostmy stroke and my struggles private for so long.
judy-cageUm, and I
bindwaves-hostand I had done that for the workplace, but also to my neighbors so that I wouldn't get, you know, the pitying looks or know, just, um, kind of all the questions. Um,
judy-cagethe
bindwaves-hostall the questions, you know. Sure are fine.
judy-cageUm, but um, I had
bindwaves-hostI just had just kept it quiet and I didn't want anyone to know
judy-cageprofessionally. Um,
bindwaves-hostand
judy-cageas
bindwaves-hostas I did more and more peer,
judy-cageum, I
bindwaves-hostI felt like the same questions were repeating. Um, and also.
judy-cagepeople wanted
bindwaves-hostto know that it was possible
judy-cagethat you could go back
bindwaves-hostto work, that you could,
judy-cageyou know you know,
bindwaves-hostyou know, rebuild your life.
judy-cageUm,
bindwaves-hostum, so I wanted to put that out there. I said, I'm,
judy-cageI don't
bindwaves-hostI don't know why I'm hiding. It's not doing anyone any good for me to hide this. So
judy-cagewhy
bindwaves-hostthat's why.
judy-cageand wrote it.
bindwaves-hostYeah. Which gets us into our next question. Um, how do you challenge ableism and invisible illness stereotypes?
judy-cageWell, um,
bindwaves-hostum, mostly I, I present very normally. Um, I, the, the more people that I meet, they tell me there's no,
judy-cagea
bindwaves-hostno way had a stroke. They don't, they don't either. Don't believe it, not that they would be conscious of it.
judy-cageOf it.
bindwaves-hostOf it. Most of the regular people
judy-cageUm,
bindwaves-hostum, are regular healthy individuals who haven't had a brain injury or, stroke.
judy-cageUm, they see
bindwaves-hostthey see me and they treat me like.
judy-cageam perfectly healthy. And
bindwaves-hostand in doing that
judy-cagehas
bindwaves-hostas contrasting
judy-cagemy own awareness
bindwaves-hostthat this is what
judy-cagethe
bindwaves-hostthe rest of the world, or sorry, the rest of the healthy world,
judy-cagesees me as, or this is this is how they naturally move about the world. But
bindwaves-hostmy understanding
judy-cageum, all of
bindwaves-hostall of this, now I can show.
judy-cageand
bindwaves-hostand announce, um,
judy-cageknow, the
bindwaves-hostthe viewpoint of a non-healthy person.
judy-cageexcuse
bindwaves-hostexcuse me. And so then as I can point
judy-cageout, I can
bindwaves-hostI can also advocate for,
judy-cagepeople in the
bindwaves-hostwell, the workplace
judy-cagecould use
bindwaves-hostuse resting stations or electrolytes or,
judy-cageOr, you know,
bindwaves-hostyou know, di different hours if they need it. Um,
judy-cageand just
bindwaves-hostjust trying to create as much awareness.
judy-cagethat as possible.
bindwaves-hostThat's good. So is there anything specific that you found that you can do or do to empower others with chronic or cognitive challenges?
judy-cageOh gosh.
bindwaves-hostGosh, I have learned so much about hu
judy-cageBecause I
bindwaves-hostas I was so stubborn with,
judy-cagewith just
bindwaves-hostjust overdoing it and then crashing.
judy-cageand
bindwaves-hostum, and then finding what my brain, uh,
judy-cageneeded for like to
bindwaves-hostlike to keep going.
judy-cageUm,
bindwaves-hostum, so if I got tired, of course the cognition disappeared,
judy-cagemy
bindwaves-hostmy
judy-cagewould
bindwaves-hostwould slow down.
judy-cageUm, and
bindwaves-hostand so I've learned, um, I've passed on to other peers, um, that, you know,
judy-cagekind of
bindwaves-hostkind of filter things out just by shutting off all stimulus.
judy-cageLike
bindwaves-hostlike if we, if I was on a Zoom call,
judy-cageum, I
bindwaves-hostI would, you know, put on closed captioning.
judy-cageBut
bindwaves-hostbut if, if there were a bunch of words on the screen, I would also just turn off the camera
judy-cageand put
bindwaves-hostand put my head down and listen to what was
judy-cagegoing
bindwaves-hostgoing on
judy-cagethat
bindwaves-hostso that I could actually absorb some of it.
judy-cageUm, and
bindwaves-hostand so,
judy-cagewhen
bindwaves-hostwhen people don't realize that when you're at a restaurant.
judy-cageyou know,
bindwaves-hostknow, you can't
judy-cageany of
bindwaves-hostany of it. That noises are bouncing off the walls, um,
judy-cageuh, that,
bindwaves-hostthat,
judy-cageI,
bindwaves-hostknow, say,
judy-cageOkay. But
bindwaves-hostbut
judy-cagepossible put in an
bindwaves-hostput in an ear plug know,
judy-cageknow, uh, or
bindwaves-hostuh, or put in both.
judy-cageUm, it
bindwaves-hostit is possible to help kind of lessen that cognitive load.
judy-cagethen,
bindwaves-hostum, also the fact that,
judy-cageum,
bindwaves-hostum, your.
judy-cageuh, you know,
bindwaves-hostyou know, you not only have physical energy that you spend
judy-cagemental
bindwaves-hostenergy, emotional,
judy-cageUm,
bindwaves-hostum, and taking into consideration everything that,
judy-cageum, have
bindwaves-hostyou have to process within the day and if you have events later in the week and
judy-cageof
bindwaves-hostkind of balance out your load,
judy-cageUm, and knowing that
bindwaves-hostthat and sharing that, just, you know, from my mistakes or from my lessons, I,
judy-cageable to share that with other survivors.
bindwaves-hostthat's really good. I'm gonna take a quick little break and just remind our listeners. To go ahead and click that like button, click that follow button, click that share button, just click all the buttons that have thumbs up and we'll go from there. But I was gonna say, I mean, I think that is so true, and I love that you recognize that in yourself and that you're sharing that with others. 'cause I know once I finally got back to being normal and thought everything was good, we started the podcast, I wanna say 10 to 12 years after my stroke. And. The first day we did the podcast 'cause just the way that things worked and it was a free thing. Someone was doing everything for us. In the beginning. We did like five podcasts in that first day, back to back to back to back. I mean, I was a corporate trainer, so I was used to talking all day. I don't mean I don't, I'm used to talking all day regardless. I'm happy to do that. But at the end of that day, I went home and took the longest nap before bed 'cause I was so mentally drained and. Everything about me. I, my body hurt, my brain hurt. I just, I was like, I, that was so much to do, and it's one of those things that I guess people take for granted in a normal day. That there's, there's, you know, they're fine. But we have found that in the clubhouse that we tell new survivors, if you can't make it the full whole day, the, in the beginning, not a big deal. You're here to work and do as much as you can do, and if after five hours you go, no, I need to, or three hours I need to go home. Or we do have a room that has, we have a quiet room that has recliners. If you need to go take a 15 minute break, no questions asked, go ahead. So it's, that's one of those, yeah, that I think a lot of people don't realize. Again, it's that you look fine. Why are you tired? Mm-hmm. Mm-hmm. Mm-hmm.
judy-cageOr,
bindwaves-hostYeah. Um, I used to have, oh, I'm so sorry. I used to have, um, um,
judy-cagea
bindwaves-hosta lot of TIAs, uh,
judy-cagethe
bindwaves-hostfrom the age of four,
judy-cageum,
bindwaves-hostum, because I have Moyamoya
judy-cagesyndrome,
bindwaves-hostsyndrome,
judy-cageUm,
bindwaves-hostand, uh,
judy-cageI, you know,
bindwaves-hostyou know, in the office, um, you know, once I was in my early twenties and on, um, prior to my surgeries and prior to the stroke, um,
judy-cageyou know, I
bindwaves-hostI would have a TIA. And I would have to leave work.
judy-cageand I
bindwaves-hostI said I had a really bad headache, and
judy-cagemy coworkers would look
bindwaves-hostwould look at me and say,
judy-cagehave
bindwaves-hostI have never gone home 'cause I've had a headache. I'm like, oh, you've never had one of these. Right.
judy-cageUm, and so,
bindwaves-hostand so, yeah, absolutely. Mm-hmm. So what is a TIA again, just to elaborate.
judy-cageis ischemic attack. It's
bindwaves-hostattack, stroke.
judy-cagestroke.
bindwaves-hostMm-hmm. Yeah. Yeah. So, wow. Especially invisible injury. I look invisible. A lot of people are like, you don't look like you have brain injury. I'm like, well, I do. And then sometimes my day too, I go home and I'm tired, like I will skip dinner and everything. I'll be like straight to bed. Then I'll wake up, I'm like, oh, it's the next day. Let me recharge my battery. Right. Yeah. Well, um, I know you said that you. Had a track career and you attempted or thought about, I know, I'm, I'm, I know, I know. But so what do you do for fun outside of work? Do you still like to run or jog or, I mean, what do you do to relax after a long day?
judy-cageOh, I do
bindwaves-hostI do not
judy-cageUm, do
bindwaves-hostdo anything faster than walking
judy-cageI have to.
bindwaves-hostUnless I do mm-hmm. Fair.
judy-cagesometimes I, I
bindwaves-hosti, I run after the dog
judy-cagea, you know, from a scooter, um, uh,
bindwaves-hostuh, I.
judy-cageyou know, I'll
bindwaves-hosti'll listen to music. Um,
judy-cageI will,
bindwaves-hosti'll,
judy-cageum,
bindwaves-hostum, you know, sometimes if I have
judy-cageenergy, I will
bindwaves-hosti'll binge watch some Netflix.
judy-cageUm, but I'll,
bindwaves-hosti'll, I'll
judy-cagethe
bindwaves-hostsnuggle with the dog,
judy-cageUsually,
bindwaves-hostbut yeah, that,
judy-cagefavorite
bindwaves-hostbe good. A good thing to do. Yeah. I would say I'm a firm believer in there's no need to run unless someone's chasing you.
judy-cageYeah.
bindwaves-hostI mean, I'll leave it at that, but yeah, even when I was healthy, I was not a runner.
judy-cageWhen I'm
bindwaves-hostwhen I'm late to an appointment
judy-cagemy
bindwaves-hostday to my chiropractor, he's a couple blocks away. Mm-hmm.
judy-cagetry to, you
bindwaves-hostto, you know, pick up my feet and go,
judy-cageI've
bindwaves-hostbut I've found that I can run run the, when
judy-cagesomething
bindwaves-hostit's something that I really am excited about,
judy-cageif it's
bindwaves-hostbut if it's something that's
judy-cageof, you know,
bindwaves-hostyou know, boring or monotonous or, you know,
judy-cageum,
bindwaves-hostum, I can't just mechanically pick out my feet, the.
judy-cageto.
bindwaves-hostYeah, I, I can't, I still have to wear an a AFO on the left leg, so my knee, my leg never came back. So I, I don't walk normal, so running is just not an option. Mm-hmm. But I can kinda walk a little fast, but it doesn't help that I have little legs too, you know, all four foot 11 of me never could walk very fast, so. Hmm. So what's one piece of advice you would like to leave with our listeners?
judy-cageone, um, big piece.
bindwaves-hostand, um, I think you
judy-cagetalked
bindwaves-hosttalked about it, um, on your pod,
judy-cageum,
bindwaves-hostum, or
judy-cageIs that all stroke survivors? You know, You know, I mean, generally they're told that you have you have six months after, after the stroke,
bindwaves-hoststroke, um, that you can.
judy-cageyou know,
bindwaves-hostknow, recovered, or that you have the most neuroplasticity,
judy-cageafter 6 months. Um,
bindwaves-hostum, that may be the case, although,
judy-cagethat
bindwaves-hostum, that doesn't mean that healing or recovery stops.
judy-cageUm, I, Things
bindwaves-hostthings have come back
judy-cageyears
bindwaves-hostafter,
judy-cagemy stroke. Um,
bindwaves-hostum, as long as you,
judy-cageum, you know, you,
bindwaves-hostyou know, you
judy-cageof
bindwaves-hostkind of improve that by continuing work on things or, you know,
judy-cageknow, um, if you
bindwaves-hostif you brush your teeth, stay with your non-dominant hand,
judy-cagemaybe,
bindwaves-hostbe, you know, rewire your brain,
judy-cageum,
bindwaves-hostum, to have more connection. And,
judy-cageI
bindwaves-hostum, I just wanna let people know that they shouldn't get discouraged if they only think that they got the six months to
judy-cageget
bindwaves-hostget things done.
judy-cageThat, that there
bindwaves-hostThat there is a lot longer. Yeah, I totally agree. Yes. And we do say that a lot. Brain injury is lifelong recovery. And we have, we're fortunate enough to have our life to continue to work on recovery. And I agree. I see 16 years later I can still see progress being made. Maybe, you know, not like leaps and bounds progress, but progress. So, um, is there anything that you feel like we should have asked you that we haven't covered yet that you would like to add in?
judy-cageNot that I can think of really.
bindwaves-hostOkay. Um, well then I'm gonna say thank you, Judy. Thanks so much for sharing your experience and words of wisdom and keep helping other survivors out there.
judy-cageAbsolutely. I
bindwaves-hostI love doing it. Thank
judy-cageso much.
bindwaves-hostso much. Thank you so much. You're welcome. And thanks to all our listeners for listening. And remember, you can find our new episodes on all your favorite platforms. Until next time. Until next time.
BernardWe hope you've enjoyed listening to BIND Waves and continue to support Brain Injury Network in our nonprofit mission, we support brain injury survivors as they reconnect into life, the community, and the workplace. And we couldn't do that without great listeners like you. We appreciate each and every one of you. Please remember to click the like button, the share button, and the subscribe button on YouTube. And follow us on Instagram at bindwaves and Brain Injury Network on Facebook. You can email us at bindwaves@thebind.org or go to our website bondwaves.org or call us at (972) 769-2463. Please continue watching. Until next time.